Welcome to my Page
What is Cystic Fibrosis (CF)?
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs.
I was diagnosed with CF within my first few weeks of life. Despite the myriad impacts CF has on me, I demonstrated resilience and perseverance throughout my life. I earned a PhD in industrial/organizational psychology and now work in the financial industry. However, this would not have been possible without my incredible support network and CF Care Teams.
I began taking Trikafta at the end of 2019 and it completely changed my life for the better. I now feel like I have so much more to look forward to in life. I have increased energy and motivation to make a difference in the CF community and feel an urge to support this beautiful community in any way possible. This is why we ride.
How has CF changed over the years?
When I was born, there were very few therapies for CF patients. The prognosis was grim and treatments were ferocious (e.g., extended sessions of "cupping" by my parents). Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.