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My CF Cycle for Life Story​

My only child, Jaxson, was born in December, 2022 and diagnosed with Cystic Fibrosis (CF) two weeks later. My husband, Jacob, and I didn’t know we were carriers of the CF F508del gene mutation until I was pregnant, which prompted our genetic testing. We were shocked and overwhelmed with no history of CF in either of our families. Nearly 40,000 people in the United States have CF, which is a progressive, genetic disease that affects the lungs, pancreas, and other organs. 

A CF diagnosis means Jaxson is immunocompromised and fights every second of his life against any type of "cold", which prolongs his recovery time to weeks, versus a healthy child that will overcome symptoms within a few days. Jaxson's chest physiotherapy and nebulizer treatments that he requires multiple times daily, also include multiple doses of medications such as Albuterol, Saline, Flonase, and Creon. All of these are very hard on him as a baby, as CF affects both his lungs and pancreas, yet these are the only options for CF patients at his age right now. However, via funding from the Cystic Fibrosis Foundation, Jaxson's life expectancy has increased to between 30-50 just within the last few years of research - and mainly due to new medications that will be available to him after he turns one!

Jaxson is an amazing and happy baby despite his struggles with CF causing  hospitalizations and additional related diagnoses, all while attempting to become acclimated to his extra medications and treatments. Jacob and I take one day at a time with Jaxson and his regiments to ensure he is the healthiest he can be, because we want him to feel just like any other kid.

I ride for my son, my husband, and every parent or person struggling with this incurable disease. I cycle for a cure and the hope that any donation will help further fund the research for medication my son desperately needs as an infant. The Cystic Fibrosis Foundation’s vision is a cure for every person with CF – a life free from the burden of this disease – and we will not leave anyone behind!

​Here's how you can support Jaxson! By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease and finding a cure. Please consider donating and make medical history! By donating to the Cystic Fibrosis Foundation on behalf of Jaxson, you give my family hope that one day there WILL be a cure for CF where my son can be a normal kid, without all the treatments or medications, and increase his life expectancy! I ride for a cure!!

All donations via the link above or my QR Code are made DIRECTLY to the Cystic Fibrosis Foundation on behalf of Jaxson, and all donations are tax deductible. The Cystic Fibrosis Foundation is a registered 501(c)(3) non-profit organization under Tax ID #: 13-930701.