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My CF Cycle for Life Story

This AMAZING young is my main motivation (and many like him)
 
Max Paul

Meet Max
My name is Max Paul. I am 18 years old, and I have cystic fibrosis. I was diagnosed with CF in November of 2005 when I was 15 months old. My parents soon learned that time and dedication in caring for someone with CF is time-consuming and quite involved. I needed medication with every meal or snack, so my body would break down and digest food. Our daily routine included nebulizer treatments to deliver aerosolized medications to break up and clear mucus from my lungs. In addition, a therapy vest also helped keep my lungs clear to avoid dangerous infections. These therapies took approximately an hour per treatment, twice daily. When I got sick, the treatments increased to 3-4 sessions daily.
Very soon after I was diagnosed, my family became involved with the Cystic Fibrosis Foundation to help raise awareness and funds for research and development of new medications and therapies. Since that early age, we have been involved with the Foundation through Great Strides walks. Most recently, we have focused on participating in Cycle for Life. Last year I achieved my dream of completing the 100-mile route! The money we have helped raise over the last 17 years has been invested by the Foundation for new medications and therapies to improve the lives of those of us who have CF.
In January 2020, I began taking Trikafta, one of the newest medications specifically developed for CF that changes how my body responds to the disease. After eight months on this new medication, I enrolled in a clinical trial to see if I could stop my nebulized medications. I am so excited that after the trial ended, we learned that the new medication was so effective that I could stop my daily nebulized treatments! This has been a HUGE relief in my daily care!
This is an opportunity to end a disease. I ask you to please support the CF Foundation's North Central Florida Chapter with a gift of any amount.

Yet, not everyone can benefit from Trikafta or other existing therapies, so we are not slowing down. Our goal remains a cure for all people with CF. Advances in genetic research have exploded in recent years, and the Foundation is leading the way in applying this emerging science to CF. Genetic therapies are our best hope for curing CF, yet they are more complex than anything we have ever done and will require a substantial investment.
I have met many incredible CF community members who help and inspire me daily. You have been an important part of our progress and the reason we have so much hope, and I hope we can count on your support this year.
Thanks for investing in our futures!

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You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.