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I am excited to be able to participate in the 2020 Cystic Fibrosis Foundation (CFF) Colorado Cycle for Life bike ride! This will be my fourth year riding and I'll cycle 30 miles again this year. This year is obviously unique in light of the COVID pandemic so all of the riders will be riding on their own. Though the format will be different, we'll still be riding in support of the ground breaking work being done by the amazing CF Community and of course, my 10 year old niece Tula! Most of you have heard about Tula from me before. She is a truly exceptional human. A beacon of energy and brightness with a fierce stubbornness that enables her to do anything her heart desires. My family and I became involved in the CFF community when Tula was born and diagnosed with this debilitating life threatening disease.
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients. Breakthrough treatments have added years to the lives of people with cystic fibrosis. Today the median predicted survival age is close to 40; a dramatic improvement from the 1950s, when a child with CF rarely lived long enough to attend elementary school. Fortunately, Tula has been very lucky and continues to live a full and active life and maintains a rigorous daily treatment routine. We are SO CLOSE TO A CURE and your support makes a real difference in the lives of those living with CF!
With heartfelt gratitude for any support you are able to provide during this challenging time.
Until it's done!