Welcome to my Page
Dear Friends, it is that time of year again for our annual CF bike ride. As most of you know our son, Levi, has Cystic Fibrosis. The good news is he continues to thrive while taking the ground breaking drug Kayldeco. He skis, plays basketball, participates in swim team and his flag football team lost in the championship game this spring. I have attached a picture of Yvette, Megan, Levi and me mountain biking in Beaver Creek last month.
Due in large part to your generous contributions the Cystic Fibrosis Foundation has made unbelievable strides in the fight against CF from Kayldeco to a very recently approved drug called Orkambi. Now we have 2 drugs treating multiple mutations and there are tangible results in these drugs and I have seen them first hand from the lower sweat chloride levels, to weight gain, to the overall improved health. Like I have always said these drugs are not necessarily a cure, but they do stop CF in its tracks. There are approximately 30,000 people living in the United States with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. Only half of those 30,000 are currently taking one of these amazing drugs and as the Chairman of Colorado’s Cystic Fibrosis Chapter Advisory Board and my number one goal is to build on our fundraising successes so every CF family will see the results I have seen in Levi.
I would be remiss if I asked anybody to contribute without doing so myself. Yvette and I made the first $1,000 contribution and our team goal “Levi’s Aliens In Lycra” is $30,000. We are also sponsoring a rest stop on the ride. There are plenty of worthy causes so anything is considered generous. The link below will take you to my fundraising page. Thank you!
Jeff, Yvette, Megan and Levi