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Philadelphia CF Cycle for Life Joins Bikes & Brews

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Raised: $200.00

Goal: $1,000.00

Welcome to my Page

At 17 months old, my daughter, Claire, was diagnosed with CF. It's a genetic disease with no cure that causes thick, sticky mucus to build up in the body. This is especially harmful in the lungs where a cycle of infection and inflammation gradually decreases lung function until the body no longer receives enough oxygen. This significantly cuts short the life span of someone with CF.

Today Claire is a smart, beautiful 21-year old. We've been lucky that she has only had to endure the worst of CF a few times: hospitalizations, surgeries and a PICC line for home IVs. She still struggles with a daily regimen of nebulizers, pills, inhalers and airway clearance. All of this and Claire still doesn't feel well. Current treatments have, however, pushed the median age of survival from single digits to 41 years old.

This incredible improvement in lifespan is due in large part to the Cystic Fibrosis Foundation. The CFF was founded in 1955 by a group of parents who had been given the same diagnosis for their child as I received for mine. The foundation has grown into a support system for CF patients, their families and doctors by funding cutting edge research with a commitment to improve not just lifespan but quality of life as well.

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