Welcome to my Page
Thank you for visiting my page and Thank you to anyone who has previously donated. Anyone is welcome to join in with a donation this year.
Amelia is my grand daughter. She was diagnosed with Cystic Fibrosis (often refered to as CF) at 6 days old. Since then she's fought every day to stay healthy. She's funny, smart, and likes to make "Pop Pop" (me) play with her while she does her Physio Therapy (lung clearing). In May of 2015, we welcomed another granddaughter who also has CF. Her name is Penelope Jayne. She spent the first 74 days of her life in the hospital with a stoma (her bowel was cut and a bag was added) because when she was born she had a blockage in her bowel due to CF. She's a spunky, crazy, fearless little girl with a big toothy grin!
Amelia and Penelope have been on a new drug that was funded by donations from people like you. Both girls have salt chloride levels that are almost normal! Salt is the fundamental issue that CF causes and what causes their lungs to get clogged with thick sticky mucus. Since starting trikafta both girls have had lung function over 100%!!!!!
While this is incredibly exciting and gives us hope, it's not a cure. It has it's side effects and isn't a long term or permanent solution. We are still waiting for the development of something that will work 100% for all people with CF.
My team is trying to raise $40,000.00 for the cystic fibrosis foundation. Please consider donating and helping Amelia and Penelope add to all Cystic Fibrosis warriors more tomorrows.
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