Stephanie's Page

Pittsburgh CF Cycle for Life 2020

Learn more about this event.

IMPORTANT NOTE: To protect the health and well-being of the cystic fibrosis community and CF Foundation staff during the COVID-19 outbreak, the cystic fibrosis community is finding new ways to come together through virtual experiences. While we will not be together in person, we can be together in spirit and participate virtually - showing the strength of our community and passion to find a cure for all people living with cystic fibrosis.

Scroll down to learn more about how to participate in your local 65 Roses Challenge event and contact your local chapter for more details.

Fundraising Progress

Donate to Me

Raised: $5,569.00

Goal: $5,000.00

Welcome to my Page

Thank you for visiting my page and Thank you to anyone who has previously donated. Anyone is welcome to join in with a donation this year.

Amelia is my grand daughter. She was diagnosed with Cystic Fibrosis (often refered to as CF) at 6 days old. Since then she's fought every day to stay healthy. She's funny, smart, and likes to make "Pop Pop" (me) play with her while she does her Physio Therapy (lung clearing). In May of 2015, we welcomed another granddaughter who also has CF. Her name is Penelope Jayne. She spent the first 74 days of her life in the hospital with a stoma (her bowel was cut and a bag was added) because when she was born she had a blockage in her bowel due to CF. She's a spunky, crazy, fearless little girl with a big toothy grin!

Cystic Fibrosis is a Genetic disorder that affects Amelia's lungs and digestive system. It creats a sticky mucus in the lungs which leads to scarring and eventually failure of the lungs. In addition roughly 1/3 of people with CF develop CF related Diabetes. CF also prevents natural enzymes from reaching the stomach, leading to failure to thrive issues and difficulty maintainting a healthy weight. Average life expectancy is in the mid 30's but that has been steadily improving because of donations to foundations like the Cystic Fibrosis Foundation. Children born in the 1980's with CF were not expected to reach school age! Today great strides are being taken in the search for a corrector and a cure. We are so very close, but we still need your help!

My team is trying to raise $25,000.00 for the cystic fibrosis foundation. Please consider donating and helping Amelia and Penelope add to there tomorrows.


My Achievements

Ride With Me!

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