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The big moment for Natalie has arrived! She just received her TRIKAFTA!!! After decades of research this drug may have the biggest impact on the CF community so far! We are SOOO very excited and grateful that Natalie is now getting this amazing potentially life changing drug! Nothing stops this super strong and tough little 8 yr old. Life with CF is tough and she needs to do 2-3 half hour vest treatments a day and breathing treaments and take 5 enzyme capsules any time she eats anything and 3 with snacks. She has to wake up earlier for school to do this and stop playing many times to get her treatments in. She is in 3rd grade and stays very very active thanks to her amazing parents! She bikes,swims,runs, hikes and has run 5K's and 10K's totally about 20 races! She is also the CF Cycle for Life Ambassador this year! I have the privilege of being her grandmother and teaching her sewing and now piano which she loves and is doing great at! Hopefully the bike ride will go as planned this year. There is still a lot of fundraising to do to make CF stand for CURE FOUND! We will get there with your help. I will be riding 15 miles or more toward that goal. Please join me in support and THANK YOU 100 times to those who have donated in the past!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I ride for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By cycling, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Support me by making a donation to my CF Cycle for Life fundraising campaign today!
The CF Cycle for Life is a unique event that empowers cyclists to take action and demonstrate their fight in finding a cure for cystic fibrosis in a tangible, emotional and powerful way.
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Help me reach my fundraising goal!