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Hi everyone. Meghan is now a college junior (as of last week). She continues to have good health overall and eligible for a newly approved triple combination drug that has shown significant improvements lung function and general health in the recently completed clinical trials.
These wonderful (although ridiculously expensive) drugs that have been approved show wonderful health improvements for those with CF - even those currently in good health. Unfortunately, they do not work for everyone and they are not a cure that would allow people with CF to stop daily treatments and other drugs. They also do not offer hope for up to 10% of people with CF. There are still many drugs in the pipeline. Clinical trials are expensive and needed to get new drugs approved and to determine the long term implications of the newly approved drugs. We're hoping that you will donate to the Cystic Fibrosis Foundation to continue to fund research and clinical trials to find that cure and make even better treatments available.
Thanks so much to those who have donated in the past. We pray that someday soon we will be writing to say that a cure has been found and no more money is needed. For now, Meghan and the 30,000 others diagnosed with CF need a cure, so we are compelled to ask for your support.
Will you please make a donation to our team and help us to find the cure?
Every donation is truly appreciated.