Welcome to my Page
This year, we will again go virtual for the Cycle For Life.
My goal will be to ride 65 miles between August 1-15. (the auto-populated 265 mile goal will likely take more time).
Meagan has continued to respond well to the Trifakta and the other treatments made possible by the CFF. She continues to be active in a variety of activities at school, including the school musical, band and becoming treasurer for her class. She got through having COVID with scarcely any symptoms. And the effect I have seen on older CF patients has been even more profound. People are making plans for events they thought they would never live to see.
But we're not done yet.
Meagan still must do an hour of treatment every day, and take many different medicines. We are lucky that these new treatments address Meagan's CF mutation, but not everyone is. We have made tremendous progress, but we are not yet across the finish line.
I invite you to be a part of changing the lives of Meagan and other CF patients.