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Our granddaughter, Eden, is our reason for relentlessly fundraising for a cure for Cystic Fibrosis. In all appearances Eden looks like a normal, rambunctious 8 year old however this is due to her twice daily therapy sessions and CF medications.
Through extensive research, there have been groundbreaking advancements in these medications over the last several years. And within the past year a life changing new CF drug has been released, Trikafta. With this new drug, some people have regained their lung capacity from twenty years ago and others have had such dramatic improvement that they were taken off the waiting list for a lung transplant. Unfortunately, Trikafta is not for everyone and it does not affect those with other than the most common CF gene mutation. And this year, Trikafta has been approved for children as young as Eden.
These advancements in treatments and medication are made possible thanks to the generous donations from people like you. With your help to fund additional research, we WILL find a cure. Please help us make CF stand for Cure Found!
Thank you for your generous support,
Keith and Gail