My CF Climb Story
We are climbing again to cure Cystic Fibrosis! We have seen so many amazing advancements since Avery's diagnosis nearly 10 1/2 years ago. Avery has benefited from every advancement that has come his way. Over the last few years on kalydeco Avery has grown so much and has been very healthy. He has missed very little school and has not been in a hospital in almost 8 years! He works hard at his health and we have been so blessed that his body responds so well to the treatments and medications we have tailored to his needs. We are forever grateful for the Cystic Fibrosis Foundation and our amazing team of supporters. Your love, prayers and donations have put Avery where he is today and we love each and every one of you for loving him!
By now you have all heard about the new drug approved. This is our kakydeco 2.0 and we have been waiting patiently for it. The data coming out of this study blows previous therapies out of the water and we can’t wait to see the results from the studies for both Avery’s genes. We expect to put Avery on this within the next 2 years- probably sooner! Your support of this team is the reason for these advancements. Everything you do for us is truly changing Avery’s life forever! But, we aren’t done yet...
We are back again for the grueling tower climb because we want to cure CF. Avery is doing amazing, but he is not cured and we know that his disease could take a turn at any time. So, we fight on until we cure this monster for Avery and every person living with CF today. We will fight until CF stands for Cure Found and we would be honored for you to come with us again this year.
With Love from team brAVERY
Cystic fibrosis is a rare, life-shortening, genetic disease found in about 30,000 people in the U.S., which causes persistent lung infections and limits the ability to breath over time. Those living with this disease are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers – all struggling each day just to breathe and live normal, healthy lives.
Sixty years ago, most children with cystic fibrosis did not live long enough to attend elementary school, but thanks to Foundation-based research and care, many people with CF are now living into their forties – achieving milestones once thought not possible, such as attending college, pursuing careers, and having a family of their own.
While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short. By participating in CF Climb, I am helping add tomorrows to the lives of all people living with CF today.
Please make a difference and support me by donating to my CF Climb fundraising campaign today!
Donate an amount that is meaningful to you, thanks.