My CF Climb Story

The good news is that they can live much longer lives.

Most die in their teens or early twenties, if not for the CF Foundation. My niece Anna lost use of one lung before she was 10, and was on the waiting list for new lungs in her 20's as the last one limped along. With the space gone for the first one, her heart was not located where yours is, in an x-ray. It tilted into the empty space of a collapsed pleural cavity. 

The first try at new lungs was less than optimal, but helpful and provided much more in the way of getting a higher VO2 readings. But, they were going into decline and she was able to have the opportunity for a better matched pair. So odd to talk about the gift of someone who has passed in the same way as new shoes, but it's what these CF kids go through to just get enough air to get off the couch. 

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I climb for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

Please support me!
By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.