Team Fer Jules is back at it! We are going to find a cure, and it's going to happen in Julia's lifetime. We don't quit around here.
BIG NEWS! Julia wins the Katie's Courage Award! If you haven’t already watched her INCREDIBLE story, please take a moment and do so. She talks about what it's like living with Cystic Fibrosis, how she’s managed the disease while being determined to breathe life to its absolute fullest. She talks about the ups and downs, the anxieties, and the rewards. It's a must watch:
Please consider making a Great Strides 2023 donation in Julia's name. Your gift will make an extraordinary impact on her life!
Because of the incredible work of the Cystic Fibrosis Foundation, the median age of survival for someone with CF has climbed to 50 years old today. To put that in perspective, consider the fact that the survival age was 18 when Julia was born. In the 1950s, kindergarten.
While the advancements are astounding, the painful truth is that cystic fibrosis still regularly takes the lives of young people. There is still no cure. We hope you will join in to help change this!
Your gift to the Cystic Fibrosis Foundation not only helps fund critical drug therapies, especially alternatives to antibiotics for CF patients who battle recurrent infections and develop resistance to them (which could very well benefit us all) but also funds important advocacy work on the federal and state level, ensuring that everyone with cystic fibrosis has access to high-quality, specialized care.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.