Join our team and help us get one step closer to a cure for cystic fibrosis!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. We walk in Great Strides for them.
We have been participating in this walk for 19 years, getting closer to a cure each year. It's that time again! Great Strides, the annual fundrasier by the Cystic Fibrosis Foundation, is right around the corner and Jacob's Heroes is once again gearing up to (virtually) walk for a cure. My cousin Jacob was diagnosed with cystic fibrosis (CF) at 1 month old. He is now 19 and lives the same life as any other young adult. Well, not exactly. Before this year, he would spend at least 2 hours a day doing breathing treatments and take 30 pills a day just to stay healthy. That is the life of someone living with CF. However, thanks to amazing new medications such as Trikafta, he no longer has to do breathing treatments everyday and is able to live a simpler life. Sadly, Trikafta does not work for everyone with CF.
Cystic fibrosis is a life-threatening illness that affects the lungs and digestive systems of those born with it. There are approximately 30,000 Americans living with cystic fibrosis with over 1,000 different mutations. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. While there is currently no cure for CF, there is HOPE!
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We've come so far, but there's still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
This past year the life expectancy for CF patients rose to 47 years. This is not enough though! While, new treatments have been discovered to help in the treatment of the effects of CF by helping stop CF in its tracks, they do not work for everyone just yet. That's why it's so important for the CF Foundation to continue in the diligent work they've done over the years. In order for a these new medicines to reach everyone living with CF and eventually for a cure to be found, there needs to be funding.
To join our team, simply click the "join my team" link to the right. Thank you so much for your love, support and prayers!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.