When Oliver was just a couple of weeks old, we received a phone call that his newborn screening test came back abnormal. After multiple sweat tests and blood tests, we discovered Oliver has two CF traits. He was originally diagnosed with CFTR - Related Metabolic Syndrome (CRMS). Unfortunately, in 2019 Oliver's sweat tests results went up significantly and his diagnosis was changed to CF.
Oliver has been on Trikafta for a whole year. We noticed that he gets over colds quicker than he used to, but his cough still lingers. Please support us!
Your money goes to funding research that allows medications to be used on different traits (like Oliver's!) We are incredibly grateful for our insurance that makes this $300,000 a year medication affordable, but that is not the case for everyone. Your money also helps other families who cannot afford these life saving medications obtain them. Your gift is 100-percent tax deductible.
Since Oliver turned 7 this year we have a goal of $700 and are hoping to increase our goal to match his age every year.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.