Let's get started with our sixth year of walking for a cure!!! Team Lex is at it again and ready to raise money for the life changing research that help all those effected with Cystic Fibrosis. Alexnader has been on a life changing medicine called Kalydeco for five years.
The research that was completed with the help of the funds raised by this foundation Alexander was able to start this medication just after turning a year old and it has had amazing effect. He is in the 99th percentil for height to weight, which we thought was a far off dream at the time, and his lungs have little mucus build up and scarring.
Even with the amazing effects of this medicine we still walk to find a cure for all those effected by Cystic Fibrosis. We walk to end the anxiety that comes from doctors appointments and waiting for lung cultures to come back hoping not to see a new bacterial growth. We walk so that our loved ones can hang up their vests, nebulizer breathing treatments and finally shelf the daily pills. We will walk until we have a cure for everyone effected!!
Please join us again as we raise money and awareness for this community and the amazing work this foundation does. Every dollar helps no matter the amount because it directly goes to helping the ones we love.
Join us on our walk with the Great Strides Foundation! Whether you are walking with us or donating to our cause we cannot wait to see you! The gift you give to this foundation will help add tomorrows to the lives of people with Cystic Fibrosis by supporting groundbreaking research and medical progress. Your gift is also 100-percent tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.