I want to take time to acknowledge every single person who has joined my family and I on the Cystic Fibrosis journey. Year after year, whether in person, in spirit, or through donations, you have been by our side. Your support of the CF community touches my heart.
As most people say, no news is good news! With that being said, I am just enjoying life each day, going another year with ZERO hospitalizations due to complications of CF. The only reason I was in the hospital recently was to have the hardware removed from my leg used to help heal the break from a year ago.
Donations have helped develop many of the treatments that I have used, Orkambi, Symdeko, and most recently Trikafta. The Foundation has announced that a new drug is on the horizon, with hopes of an even better outcome! This goes to show that every penny given to the Cystic Fibrosis Foundation is truly used to its full potential or these drugs would not exist for many of us with CF. I cannot speak for everyone else but my quality of and outlook on life has changed drastically because of how good I feel by becoming a “healthier” version of myself with CF.
While I can rave about how well I am doing, there are still many with CF who are not able to benefit from the same treatments due to their specific CF mutation. This is why we need to keep raising money so that ALL of us can enjoy these new drugs and live life to the fullest.
I hope to see everyone at the walk this year! So put on your Jillian’s Jaywalkers’ shirt, have some fun, get some exercise and enjoy some good food! Last year, we had the largest team turnout. Let’s see if we can make the team count even higher this year
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.