No one in our families was ever diagnosed with cystic fibrosis, but I had heard of it. I went to school with a girl that had cf. As children, I can remember her family having fundraisers and participating-but I never really understood the disease. In high school, we became teammates and friends. I understood a little more, but still didn't truly know her struggle. She was so happy and always trying to make us laugh, we didn't talk much about the disease. Sadly, when she turned 25, she lost her fight while waiting on a lung transplant. So of course, when Kendall's newborn screenings showed she tested positive for Cystic Fibrosis-I felt like she was given a death sentence...we were devastated.
Thankfully, a lot has changed since then! With supporters like you by our side, the Cystic Fibrosis Foundation continues in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone with CF has doubled in the last 30 years. Despite this progress, we still need a cure!
Our Kendall is a FIGHTER-she does not let CF define her! Your support can help find a cure for Cystic Fibrosis!!
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.