It’s hard not to reminisce as we are in a season of lots of endings and looking forward to a lot of new beginnings. This is our 19th walk for the Cystic Fibrosis Foundation. Our first walk was when Megan was just about 5 months old. We didn’t know what her life would be like and what her future would hold.So much fear and uncertainty, yet so much joy and hopefulness.It has not been an easy ride, but we are so grateful for Megan’s relatively good health and her ability to grow, and succeed and achieve.Proudly, she officially earned her Girl Scout Gold Award in 2022 and will receive it this June.Additionally, Megan will graduate from high school and she is headed to Colorado College this fall.We are incredibly excited for her.
Since we began, Team Megan has raised over $1,075,000. Mind boggling! And we know that Team Megan has made a difference in so many lives. Trikafta, a life changing drug, was approved by the FDA in October of 2019. Trikafta treats the underlying cause of cystic fibrosis and it has proven to slow the progression of the disease and prevent the decrease of lung function. Over the past several years, this drug has proven to be life changing for so many individuals with CF. Most notably, the median predicted survival age is now 56. This is an 18 year increase over the last decade. Thank you for your help in making that happen.
But we are not done. We still need a cure. So, we are asking you, once again, to support Team Megan. A donation of any kind would be greatly appreciated.
While Megan will not be in attendance at the walk this year (prom weekend), Kelsey and I will be walking in Chicago on Sunday, May 21 at Montrose Harbor. If you are interested in walking with us, you can signup to walk or just let me know at firstname.lastname@example.org.
We are continually grateful for the outpouring of love and support. Thank you so much! Love,
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.