A cause that is near and dear to our family’s hearts needs donations to find a cure for Cystic Fibrosis! Please consider donating to our son’s team, Wade’s Warriors.
If you’ve had babies, you’re all familiar with the newborn screening which includes a prick of the foot. The test seems routine. You assume everything is going to be perfectly normal and that your baby is healthy. In this case, with Wade, this one test changed the way we look at the blood tests forever. During the 10th day of Wade being in the NICU, a Friday, hearing the words “Cystic Fibrosis” coming from the NICU doctors’ mouth from underneath her mask brought a mixture of emotions to Patrick and I as parents. Immediately we were scheduled with a CF Specialist at Cardinal Glennon that following Monday. Those 72 hours were the scariest 72 hours we ever experienced. The waiting game to find out what does this diagnosis mean for Wade? After meeting with Dr. Smiley, whom we now see every 3 months, put our minds at ease. Since that day, the entire family decided that we are not going to let CF define Wade, or his dreams in life, with just a few extra steps in his everyday routine. Which include his breathing treatments twice a day for 30 minutes at a time (while enjoying Peppa on his tablet), enzymes with applesauce before every meal, supplements, and a multi-vitamin. Wade has been handling CF like a WARRIOR and will continue to do so.
For those of you that do not know what Cystic Fibrosis is, it’s a progressive, genetic disease that causes long-lasting lung infections and limits the ability to breathe over time. People with Cystic Fibrosis have a difficult time absorbing nutrients and gaining weight. While there is not yet a cure for CF, modern medicine has come a long way with treatments and guidance for managing and living with this chronic disease. Especially when diagnosis and treatment begins at a young age, the future is brighter!
We’ve created a group for Wade called Wade’s Warriors….Please join Wade’s Warriors on May 20h at Fenton City Park. Your donation means a stride that much closer to a CURE for CF! THANK YOU FROM THE BOTTOM OF OUR HEARTS! Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.