March 2022 has rolled in! It's time once again for our annual Cystic Fibrosis Great Strides walk fundraiser. We wish we could go back and share the very first letter we wrote to you 30 years ago! We are so humbled by the fact that many of you have been with us since the beginning. It is equally humbling and heartwarming to look back at the people we've met along the way who continue to support us.
If we've learned one thing these past couple of years it's that research is key. The dedication and commitment of the CF Foundation's doctors and scientists is nothing short of amazing! We have been patient and thankful for every therapy and drug that has helped Alyson over the years. The most recent one, TRIKAFTA (2019), has improved AlysonÃÂ˘EURs quality of life in every way! She is fortunate to have access to it and takes it every day. She is loving her new life in Colorado! She hikes and skis without limitations because of her medicine.
Cystic fibrosis affects 30,000 people in the United States. The Cystic fibrosis foundation relies on all private funding. We sincerely appreciate any donations, large or small.
We continue to look forward to the day when CF stands for CURE FOUND!
Take care and thank you in advance for your support! Patrick, Jean and Alyson
If you wish to contribute, please link to TEAM ALYSON'S secure donation page.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.