You would never guess upon meeting Fisher that there is anything atypical about him. He is active, joyful, and endlessly curious about the world. We are so grateful that Fisher has been healthy, but reality is that for a child with CF, "healthy" includes 20 pills, 3 nebulizer treatments and an hour of chest physiotherapy every single day. It means trying to get as many calories as possible into every bite and constantly worrying about his nutrition.Avoiding crowds to try to keep his lungs healthy and worrying over exposure to things that most parents don't think twice about. Endless blood draws, doctors appointments, x-rays, etc.
Recently, there have been huge advancements in medications available to those with CF including the approval of Trikafta, a drug that that will change the lives of 90% of those who suffer from the disease. Unfortunately, the genetic mutations that cause Fisher's CF are quite rare and he is the only individual with his combination. Because of this we are really appreciate the CF Foundation's commitment to "no mutation left behind".
Like most moms, I think about my son's future every day. Unlike most moms I wonder if my child will be healthy enough as an adult to have a career that he loves or to meet the partner of his dreams. The quality of life for people with Cystic Fibrosis has come such a long way in the past 50 years. Today, people with CF are living into their 30's and Fisher's generation is expected to live even longer. But as a mom I want more than a chance at middle age for my sweet, funny little boy. I want nothing more than for CF to stand for Cure Found. For him and the 30,000 others fighting along side him. Please consider making a donation to Team Fisher and help to further the huge strides that have been made for people like my son. Truly, every dollar counts in this fight.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.