Welcome to Payt’s Powerhouse page!
If you are new here, thanks for checking us out. If not, welcome back to our 8th year of fundraising!
This past year was extra special because Payton was able to start Trikafta, a medication that reverses the effects of her mutations, and live in Hawaii for 8 months! She was able to start it a week before her 8th birthday. Happy Birthday Princess Warrior!
We quickly found out that Payton is one with the ocean and could be mistaken as a mermaid. The salt water was the perfect therapy for her lungs so we took full advantage of swimming with dolphins, monk seal, manta rays, turtles, sharks, and all the gorgeous fish. On land you will find Payton tapping, free form dancing, and singing to the top of her lungs. This is truly what makes this girl happy!
Payton does her vest twice a day for 24 minutes along with a nebulizer treatment as her normal routine. She has improved her numbers with her PFTs (pulmonary function tests) and is gaining weight and growing appropriately. Her last PFT was 124%! Our goal is always to be above 80%.
I know there are several fundraising efforts out there and it can seem overwhelming at times, especially now with everything we all have endured the past year. We just ask that you please take the time to read our story, keep Payton in your prayers, and if you by any chance have an extra $5 to donate we would love that as well. Thank you in advance for all of you and all the kindness you have shown Payton and our family. We wouldn’t be able to do this year after year if it weren’t for you all.
Much love,
Chris, Brianne, Payton, and Lincoln
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