Team Connor is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life and have access to life-saving genetic modulators that help slow disease progression.
The Cystic Fibrosis Foundation is a nonprofit organization that funds CF-related research focusing on medical breakthroughs and finding a cure for this horrendous genetic condition. With the teams fundraising goal of $500 by April 29th-you can help us reach that goal in multiple ways by either joining our team, making a donation, hosting a fundraising event at your small business, sponsoring Team Connor, or sharing our story/donation link!
Our Great Strides Story
Connor is a twelve-year-old living with cystic fibrosis. Before the genetic modulator, Trikafta, Connor spent the majority of his life hospitalized fighting recurrent respiratory infections and cf related gastroparesis. Before Trikafta, Connor's lung function was at an all-time low of 53% at the age of 9-a clear indicator of disease progression. With Trikafta, he's now breathing at an all-time high of 88% and even got his feeding tube removed last fall! However, Connor's liver has accumulated scar tissue from the years of CF tormenting his young body and is unable to handle metabolizing the full dosage of this life-saving medication.
Not every person living with CF has the luxury of being prescribed one of these life-saving genetic modulators; some countries don't have access to this medication and young people are still dying from CF. It is also important to acknowledge that these genetic modulators cannot help everyone with CF depending on their specific genetic mutation or like in Connor's case, their liver is unable to tolerate the full dosage- thus allowing CF to continue to ravage their bodies.
Join our team to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising.
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found. Thank you to everyone helping us reach this goal- I am overwhelmingly gracious for the support.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.