Xander is ready for his first in person walk! We're so lucky to have been diagnosed during a time of newborn screenings, pancreatic enzymes, modulator trials and an duly CF clinics- none of them were around even 30 years ago, and it happened because of communities of people who loved a cf'er and put their money and advocacy behind them.
Xander is a two year old who never stops- he runs and laughs until he falls down asleep, and he's going to be encouraged to keep being that fighter (but with hopefully a little less FOMO).
A pandemic baby, he was born just before the world shut down, and while we really miss knowing and spending time with all of you amazing people who have supported us, he has been so healthy- what other two year old do you know who has never had a cold?! (Especially one with lungs that look like pneumonia at baseline, this is impressive).
Turd bird is part of medical studies and zoom calls that help medical students understand rare diseases on a human level and increase interest in specializing. He loves his vest, swallows pills better than most adults and hates nebulizers.
Join our team and help us get one step closer to a cure for cystic fibrosis - a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.