Bryce Porter Bungard was born April 8, 2019. Two years later, almost to the day, his baby sister Elsie Marloes was born on April 18, 2021. At two weeks old, they were both diagnosed with Cystic Fibrosis. In 2019, when Bryce was diagnosed the news came as quite a shock to his family, but they did what they do best-they rallied! They joined with the CF Foundation to help raise awareness and support the foundation’s mission to cure CF. In 3 short years, since joining forces with the foundation, Bryce & Elsie’s Buddies has raised almost $60,000! We couldn’t have done it without the help of our friends and family.
In October of 2019, the FDA approved a new triple combo called Trikafta, a new, highly effective CFTR modulator therapy that treats the underlying cause of CF. TRIKAFTA was approved for people 12 and older who have at least one F508del mutation, which Bryce and Elsie both have! In June of 2021, they approved Trikafta for 6-11 year olds. The approval of TRIKAFTA means that more than 90 percent of people with CF could eventually have a highly effective treatment for the underlying cause of their disease. They are currently testing TRIKAFTA on children ages 2-6. This is such exciting news for the CF community!
Today Bryce is a thriving (almost) 3 year old who loves running around, playing with his big brother Rowan and talking up a storm. Elsie is a happy 9 month old who loves giggling at her brothers, crawling and eating new foods! Their diagnosis was life changing, but with the support of their family, it isn’t changing their life! They continue to amaze their doctors with their overall good health!
We are so thankful for everyone who continues to help raise funds and awareness so one day CF can stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.