It’s that time of year again, we need you now more than ever! We are SO very close in finding a cure but as you know we need the funds to do so. They have come a long way with giving CFers a longer better quality of life BUT still NO cure! And we get NO government funding! As you know Cystic Fibrosis is a LIFE-THREATENING progressive disease that affects the respitory & digestive system. It requires numerous hours of treatments, airway clearence & lots of medication just to get through a day.
Its has been an EXTREMELY challenging last couple of years. Hospitalized over 140 days, open heart surgery in Pittsburgh 2/11/16, (10) procedures to band the esophageal varices, (2) sinus surgeries, (6) admissions for what they call a tune up & gets admitted into the hospital for a minimum of 2/3weeks, (2) abdominal surgeries in Pittsburgh for a ruptured appendix that the school nurse didn’t believe that he had stomach pain.
Nathan hasn’t been hospitalized in 2 1/2yrs! Thanks to a “MIRACLE” drug called Trikafta! NO bacteria, weight/energy/lung function all increased. He has been discharged from Pittsburgh & NO longer needs a liver transplantā€¼
WILL YOU PLEASE FIND IT IN YOUR HEART TO DONATE SOMETHING? NO AMOUNT IS TOO SMALL! We promise Nathan will make sure to do his part. He does it every single day with a great big smile on his face, he has so much faith & believes there will be a cure real soon thanks to your generosity, love & support you have given him.
There are NO words to express how forever greatful we are that you have been by my sons side!!! My hero who has given me stregth & inspires me daily.
May every single dollar donated be returned in great health, wealth & happiness The Khoury Family
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.