Please consider making a Great Strides 2022 donation in Julia's name. Your gift will make an extraordinary impact on her life!
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. We all know by now the stark reality of those who struggle with a compromised immune system.
Living with cystic fibrosis is a microcosm of the widespread risks of persistent antibiotic use and the potential effects of antibiotic-resistant organisms. It is more critical than ever to continue the development of new and improved treatments for complications from the disease.
Because of the incredible work of the Cystic Fibrosis Foundation, the median age of survival for someone with CF has climbed to 50 years old today. To put that in perspective, consider the fact that the survival age was 18 when Julia was born. In the 1950s, kindergarten.
While the advancements are astounding, the painful truth is that cystic fibrosis still regularly takes the lives of young people. There is still no cure. We hope you will join in to help change this!
Your gift to the Cystic Fibrosis Foundation not only helps fund critical drug therapies, especially alternatives to antibiotics for CF patients who battle recurrent infections and develop resistance - which could very well benefit us all - but also helps fund important advocacy work on the federal and state level, ensuring that everyone with cystic fibrosis has access to high-quality, specialized care.
Please join us! Even if you can only spare a dollar!
Together, we are going to find a cure, and it's going to happen in Julia's lifetime.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.