After 2 years of virtual events, we are returning to an “in person” Cystic Fibrosis Great Strides Walk. The CF community has ensured the safety of all by having virtual events but feel the time is right to come together. We will celebrate the “Great Strides” that the CF Foundation has made and to raise money to support further research to find a cure. This past year we hit a new milestone with the median life expectancy of someone with CF reaching 50 years old!! We never imagined that number when our children were diagnosed. Despite this, there are still too many people losing their battle to CF each year. This is what motivates us to keep fundraising and support the CF Foundation.
Since the approval of Trikafta, the median life expectancy has increased, lung transplants and hospitalizations have decreased and the overall health of those taking Trikafta has improved dramatically allowing them to take less medications and require less respiratory treatments. However, Trikafta is not approved for everyone, so our challenge continues to find something to make CF stand for Cure Found!
The CF Foundation has invested hundreds of millions of dollars into scientific research taking a multipronged approach investing in gene therapy, antibiotic development, CFTR modulators (such as Trikafta) and so much more.
Nicole, Dustin and Katelyn are all doing well and are staying healthy thanks to all these advancements. Nicole is a very busy mom of 2 boys, Dorian and Lucius, and an owner of a farm. There is never a quiet moment at her house. Dustin is putting finishing touches on his new home and will be moving in soon. He loves working in construction/home renovation and you can see the quality of his work in his home. Katelyn is a super mom to Jameson and is in the early stages of building her own home. So, as you can see our children are living a full life thanks to the advancements made by the CF Foundation.
Please help us by supporting the CF Foundation so they can continue this critical work for all living with CF. Our Poughkeepsie Great Strides Walk will take place on June 5th at Bowdoin Park with check in at 10 and walk at 11. Please join our family team “Curcio Family” for this day of celebration. If you are unable to attend and could support our team with a donation to the CFF we would be so grateful. You can register for the walk or donate online at fightcf.cff.org/goto/curciofamily or send a check to our home. For those on Long Island, we will also be walking in the Suffolk Great Strides Walk at the Holtsville Ecology Center and Zoo on May 15th with check in at 9 and walk at 10. You can join our team there at fightcf.cff.org/goto/curciofamilyLI or make an online donation.
Thank you for your continued support, love and prayers.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.