I have spent nearly 7 years working for the CF Foundation; an organization I care deeply for. No, I dont have a direct connection to this disease but after 7 years, I have had the priviledge of calling this community a second family.
The story of cystic fibrosis is the most significant story in modern medicine. The collaboration among the FDA, a non-profit, big pharma and most importantly, people with CF and their families has resulted in the creation of drugs that are extending the lives of people with CF by decades.
The CF Foundation is the most effective organization dedicated to curing cystic fibrosis and helping people with CF navigate the complexities of their disease. The Foundation has funded EVERY drug available today for the treatment of both the symptoms and the underlying genetic defect that causes CF. As a result of over 50 years of funding R&D projects, more than 50% of people with cystic fibrosis are now 18 years of age or older. But there is still no cure.
I strongly believe that if each of us were to choose a cause, dedicate our time, talent or treasure, that we would see a tremendous impact on those who need it the most. Cystic fibrosis my cause.
Every donation is an investment. An investment in the lives of 30,000 Americans battling this disease. This Foundation is changing the landscape of personalized medicine and investing in gene editing so that one day, people with CF will walk into a doctor's office and walk out free of cystic fibrosis.
Please support me.
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.