Cystic Fibrosis: A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
The trajectory to find a cure for Cystic Fibrosis is an obtainable goal that we are close to seeing. We can't get there without your generosity and back in this fight.
The diagnosis of this disease has crushed us, changed our lives, and destroyed us in every way possible while simultaneously building us back up and molding us in to stronger people. The pain of hearing the words that your child has an incurable fatal disease is absolutely debilitating.
And we aren't taking 'sometimes 30'. And we aren't built to back down.
So here we are, and here will stay, asking for your love and support for the center core fight of our life and that is being part of helping us so that Grahym can say she USED to have Cystic Fibrosis. Fighting with us so that our daughter can breathe easy. Fighting with us so that 30,000 can breathe easy.
Here will stay year after year until we crush this monster. Our goal is that parents won't have to hear or experience the debilitating pain of CF in the foreseeable future.
Maybe this year you will double down on a cause that is literally saving lives. When the cure comes for CF and this disease is eradicated - you can know you had a huge part in making it happen. Every single dollar counts and every single dollar is getting us there.
If you want to know where your generous donations went to last year, We are happy to inform you that it was able to fund ground breaking research that has helped create a triple combination modulator for 90% of people with CF - essentially producing a CFTR protein corrector and reversing the underlying cause of the disease at a cellular level (Please note this is not a cure) and is currently in phase 3 of clinical trial showing promising results. All financial information and pipeline development can be found on cff.org
People with CF spend 2 hours a day doing airway clearance and breathing treatments along with 40+ pills a day in order to breathe and stay healthy.
We’re making lemonade out of lemons. WE WILL WIN this war and nothing will be sweeter than when we cross the line of victory. Please join the fight.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.