This is the team page of Rachel's Rangers Charlotte
My grand-daughter Rachel has Cystic Fibrosis. CF is a devasting genetic disease that affects and cuts short the life of tens of thousands of children and young adults in the United States. Cystic Fibrosis effects the lungs and digestive system. A defective gene causes the body to produce an unusually thick mucus that clogs the lungs and leads to life threatening lung infections. It also obstructs the pancreas and stops natural enzymes from helping the body to break down and absorb food. Real progress has been made in the treatment of the disease and the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease...........yet.
Rachel is very active in swim, Tahitian dance, basketball, volleyball, bicycling, and gymnastics........all because they are fun but they also provide a great source of exercise which is important for strong lungs. She continues to take 13+ pills every day, uses an inhaler twice daily, does breathing treatments three times a day as well as an hour of chest therapy twice a day to fight CF. Eventhough Rachel has to do all these things to try and stay a step ahead of CF, she is always smiling.
Great Strides is the Cystic Fibrosis Foundations largest and most successful national fundraising event. Nearly 90 cents of every dollar of revenue raised is used in vital CF programs to support research, care and education. There are currently 2 promising drugs in the drug pipeline but it takes money to furthur the research. There are no government grants or funding. I will be participating in this year's walk in uptown on May 18th. Please help me meet my team's fundraising goal of $4,000 by sponsoring me.
ANY amount you can donate is greatly appreciated! Making a donation is easy and secure. Just click the "Donate To Me" button on this page to make a donation that will be credited to my team. Your gift is 100% tax deductible.
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.