Ethan was diagnosed with CF at three weeks old. We were shocked and terrified, BUT we finally had an answer for why our tiny newborn had been losing so much weight and was constantly hungry! After he began treatment he went from the 9th percentile to the 80th percentile with the help of treatments, medication, and an amazing care team. Ethan is growing and THRIVING!
Ethan is now a VERY busy 3 year old who loves cars, cars, and more cars, anything red, singing his ABC's, beginning to read, counting, taking things apart to see how they work, feeding his hummingbirds, cleaning the house with mommy, building things with daddy, and playing with his kitties. Somehow he still has time in his busy day to fit in all his treatments! We usually start each day with the vest and misty-mist (aka his percussion therapy vest and the nebulizer) before breakfast. His second session is usually before dinner (a less-full stomach is better!)
Like so many families, we are patiently waiting for the groundbreaking drug Trikafta to be approved for Ethan's age range. Hopefully sometime before the end of the year!!!
Please join our team, make a donation for Ethan, and help us get one step closer to a cure for cystic fibrosis - a rare, genetic, life-shortening disease that makes it difficult to breathe.
Every dollar makes a difference!! It goes to directly to the CF Foundation's research that provides groundbreaking medication (modulators like Trikafta), new treatments, and studies (like gene therapy!) that could soon result in a cure for Ethan and thousands of others like him!
Thank you from the bottom of our hearts!
We love you all!
Love,
Ethan, Lisa, & Richard
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