There are a lot of inspiring people in this world who face monumental life struggles each every day. For children and adults with Cystic Fibrosis the struggle is real. To breathe, to walk, and do normal everyday tasks that most people don't even think about, can and do involve a lot of extra planning and encouragement to complete. As some of you reading this already know, I am one of the 30,000 people living with Cystic Fibrosis in the USA and I am one of the lucky ones to have gone through a lifesaving double lung transplant. While a lung transplant does not cure Cystic Fibrosis, it does add a much higher quality of life and quantity of years. I am incredibly grateful and thankful for my donor each and every day.
The Cystic Fibrosis Great Strides fundraiser is an event my family and I have participated in most of my life. I have many cherished childhood memories of this yearly fundraiser event and have had the opportunity to meet some pretty incredible people along the way. This event is not only about raising money for Cystic Fibrosis research and helping local families, it's also about connecting families, friends, care takers who have one thing in common: Cystic Fibrosis a genetic, incurable, terminal disease that needs just as much national attention as every other incurable, terminal disease out there.
How can you help?
Get involved! Join our team, Anny's Angels on Saturday May 14th 2022 for the Great Strides in person Event! Make any donation whether it's spare change from under the couch, or sizable yearly tax deductible donation. Can't make a donation? Pay it forward and raise awareness of Cystic Fibrosis by doing a good deed to brighten someone's day! Help us make CF Stand for Cure Found and let's make the world a brighter place!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.