Thank you for visiting Evelyn's Entourage donation page! Evelyn is a sassy 6 year old Cystic Fibrosis superhero living in Virginia Beach.
Evelyn LOVES a good story, and her story is a good one. A week before her due date she made a surprise entrance into this world in the front seat of a Mazda in the hospital parking lot. With all the confusion of her vehicular birth the results of her infant screenings were overlooked and she was not diagnosed with CF until her 4 month check up. At that point she had failed to gain weight for 4 weeks and was categorized a failure to thrive baby.
Thus began the CF journey of medications, hospital stays, a nasal feeding tube, a gastric feeding tube placement surgery, and the introduction of multiple treatments and therapies. Evelyn is currently on 10 different medications and does 2-4 airway treatments a day. Still, her case is deemed mild compared to other kids with CF her age.
No matter what we throw at her, Evelyn remains a bright light of joy in a sea of challenges. She loves to color, dance, write/preform songs, ride bikes, and makes friends where ever she goes.
When she grows up she wants to be an architect princess rock star. With your help and support there is no doubt she can do it all. Thank you for adding tomorrows, her epic story is just beginning.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.