Have you heard of Cystic Fibrosis but aren’t exactly sure what the disease entails? Here is a little background info:
Cystic fibrosis is an inherited chronic disease that affects the lungs & digestive system of about 30,000 children & adults in the U.S (70,000 worldwide). A defective gene & its protein product cause the body to produce unusually thick, sticky mucus that: -clogs the lungs & leads to life-threatening lung infections -obstructs the pancreas & stops natural enzymes from helping the body break down and absorb food
For those of you who may be unaware, Sienna was diagnosed with Cystic Fibrosis shortly after birth. She is a tutu & rainbow loving (almost) 6 year old who has the biggest heart. She continues to amaze our family with her strength and perseverance while battling CF.
We need donations to help find a CURE for Sienna and all others fighting this disease.
Please click “donate to a Team Member” at the top of this page.
We would love to see you at the Great Strides Walk on Saturday, May 11th at Long Branch Park. Check in begins @ 9:00am and the walk begins at 10:00am. Please register under “Strides for Sienna”.
Our family thanks you in advance for your continued support and we hope to see you on 5/11!
With love from our family, Lenny & Lisa DelVecchio John & Anne Flaminio
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.