Look at this guy, turned 11 in March and walking in his 12th Great Strides walk to find a cure for Cystic Fibrosis!
He loves playing with making movies, playing the piano, playing video games and hanging out with his buddies. Beckett has been learning remotely all year and wi be going back to school soon. During the pandemic we switched from his small private school to our neighborhood school and Beckett is excited to start middle school with his neighborhood friends.
He works to stay healthy every day by taking lots of medicine and spending hours doing airway clearance therapy. He is very patient at his quarterly checkups and brave when he does his PTFs, X-rays, and blood draws. Beckett is doing all he can do at his age to fight CF. Last year he began taking Symdeko, the drug we have been fundraising for. This drug attacks the disease on a cellular level. So far he has been responding well to the treatment and has avoided hospitalization again this year.
We are always trying to stay in front of Beckett's health. It takes monthly, weekly, daily and hourly discipline. Beckett's continued health is a fantastic reward for our efforts but there is more we can do, like this annual fundraising for medical research. It is empowering to know that we can be a part of finding a cure for CF and increasing the life expectancy for everyone with CF.
We are so grateful for everyone who has supported us once before and for those of you who make an annual donation. This year is just as important as years past, this year we have a chance to make a statement in the Portland Great Strides by celebrating that our national team has raised $400,000 in 10 years!
Every donation to Beckett's Team will be matched by the Tim and Nan Corwin Charitable Trust Foundation.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.