At just 18 days old, our precious boy was diagnosed with cystic fibrosis. As first-time parents, the news crushed us. But now we have been in this fight with him for over a year and we will keep fighting until CF stands for "Cure Found!" With every ounce of energy in us, we pursue the most innovative treatments for him, we raise money in the fervent hope for a cure, and we spread awareness to anyone who will listen. And we do it all while thanking God for giving us Samuel, and thanking you for jumping into this fight alongside us.
We knew that Samuel was miraculous from the day we found out we were pregnant, but it's clear that God has even bigger plans for him. We have no doubt that he will inspire us all with his strength in tackling whatever lies ahead.
Sadly, the lives of people with CF are still being cut short and the life expectency is about 40 years old. We just don't think that's long enough for Samuel, or anyone else out there. A cure is on the horizon, but it takes money to find that cure and CF is such a rare disease that no government dollars go towards it. Through the fundraising work of people like you, there are a record number of new drugs being studied to change the course of this disease. The next dollar raised could be the one that finds the miracle we pray for everyday! Please join us in our fight by donating to or joining our team. Together we are Samuel Strong!
HOW YOU CAN HELP
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are sons, daughters, moms, dads, sisters, brothers, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.