As you may have heard, 2020 has been quite a year. With all the concerns in the world, our family has great reason for hope. A drug called Trikafta, which has shown great promise to improve the health of those with Cystic Fibrosis (CF), is available to patients 12 and over and is in drug trials for those age 6-11. This combination of drugs has shown a double digit increase in lung function with decreased lung issues for those on the drug! We are excited for the future and increase in quality of life for Beckett and others fighting CF.
Beckett is a healthy fifth-grader with a joy for life, friends, and video games that is hard to match. While we continue to work hard to maintain his health with daily treatments, medications, and doctor visits, we know that a cure is out there for Beckett and all those with CF.
Beckett’s quality of life would not be possible without the work of the Cystic Fibrosis Foundation. From creating the framework for a network of care centers that supports those with CF to funding groundbreaking research, the Foundation has established standards of care and treatment that make living with CF a reality.
With all the advances in care for those with CF, there is still much to do. We will not rest until we have a cure! Join us in supporting an organization that provides hope to so many families and individuals with CF. Join us in supporting a foundation that continues to show its value time and again.
Please consider joining Team Beckett and asking those around you to sponsor our Team. We love our donors, they make so many awesome things happen; but we are ecstatic about our teammates! We are asking our team to ask just two friends or family members to donate to the cause. Just think, you could tell our story to that strange uncle and a good friend and you could be an official member of Team Beckett!
Lastly, consider a 100-percent tax deductible donation to Team Beckett to help us find a cure. The Cystic Fibrosis Foundation uses these funds efficiently, with 90 cents of every dollar going directly to research and improving lives.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.