Hey, everyone! Many of you on this page already know my little brother, Timothy, and know that he was diagnosed with Cystic Fibrosis. To those of you who are new, welcome and THANK YOU for wanting to learn more about CF! Cystic Fibrosis (“CF”) is a genetic disorder than limits a person’s ability to breathe and absorb the necessary nutrients needed to grow. Many individuals require medications, breathing treatments, and sometimes lung transplants throughout their lifetime. There have been amazing advancements in medicine and science over the past few years that have doubled the life expectancy of CF fighters and made their lives just that much easier, but the fight for a cure is still far from over!
To my new faces, let me introduce my little brother and the reason we are fighting for a cure for CF! Timothy was diagnosed with CF when he was two years old. That may seem young; however, he was diagnosed late, and as a result, underwent major surgery at a very young age to remove one of the lobes in his lungs. He is now 14 years old and thriving! Each and every day of his life, Timothy is strapped into a vest, twice a day, that squeezes and shakes his body in an attempt to loosen up any buildup in his lungs and takes handfuls of medications to assist his body with its daily functions. Despite these setbacks, Timothy is a powerlifter, baseball player, gamer, and overall pain in everyone’s butts! He is loving and understanding and the best little brother we could have ever asked for.
We have been fighting for a cure for this disorder for 12 years now and each year, we are THAT MUCH CLOSER! All donations to Great Strides and the CF Foundation go directly to the fight for a cure (and are tax deductible). If you are unable to donate, please continue to educate yourself and those around you! The more awareness we bring to Cystic Fibrosis, the closer my little brother is to a life free of medications and machines. Thank you so much for your continued support! We love you!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.