Hello I wanted to let everyone know the reason behind wanting to walk for cystic fibrosis. My daughter Natalia was diagnosed with CF in her new born screening. We knew she could potentially have this disease while I was still pregnant with her. At only 20 weeks pregnant the doctors discovered that I was a carrier of this gene. I was informed that I was still within the time frame to terminate the pregnancy like I had that risk. There was no way in this world I would terminate the life of my own baby girl. No matter how she arrived we where going to love her the same. Natalia will turn 5 and has been fighting since day 1. We have had long hospital stays and operations but we will not let cf get the best of her. She's a blessing and we love her. She's a sweet little girl but can have a little diva attitude. She has a smile on everyday that seems to keep us in a good mood. She has taught me how to be strong and not let life knock you down. Help us raise awareness for cystic fibrosis, donate and join our team and walk with us May 19,2019. Thank you.
Join our team and help add tomorrows!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.