Luna is a spunky, fun, smart and loving 5 yr old. Luna loves attending her pre-school everyday. She gets to ride the bus, make new friends, and has learned so many things already such as spelling her name. One of the biggest things she looks forward to is being ready to go to the big school like brother and sister. Many have heard through the years that Luna has Cystic Fibrosis however there are many that dont fully understand what that means for her and waht the means on her day to day life. Luna has to wake up earlier than others her age because she has to complete two medicated nebulizers as well has cheast therapy before she is allowed to leave. Lunas days end in close to the same manor but when she is sick she has to do two more treatments a day for a total of four. Throughout the day there are other medicines she has to take as well; extra vitamins, acid reflux, miralax, sinus spray. The one Luna takes the most is her enzymes. She must take these everytime she eats or she will not digest anything properly to sustaine her body and will fail to thrive. So even though Luna looks perfect and healthy on the outside, on the inside, her body is fighting a battle none of us can see. Luna along with many others, have Cystic Fibrosis and need our help finding a cure.
Our daughter Luna is the youngest of three, beautiful children and, at 6 weeks old, was diagnosed with a terminal disease. I won't ever forget the words telling us our daughter was "sick". We didn't even know what cystic fibrosis was at the time and, as parents, felt it was a death sentence for little Luna. We secluded ourselves, for fear she would get a simple cold, because we wanted to have every possible second with her that we could. We were told that CF is a recessive genetic disease that is progressive in its damage to the body. Both parents have to carry the recessive gene, and even then, there is only a 25% chance that the child would be born with the disease. It causes thick, sticky mucus to build up in the lungs, pancreas and other internal oragns. The mucus clogs the airways in the lungs, trapping bacterias and causes extensive damage, eventually leading to respitory failure. In the pancreas, the mucus prevents digestive enzymes from releasing, causing malnutrition due to the inablity of the body to process nutrients. These were very heavy concepts for us to process.
Many CFer's take the same medications as Luna they all have to ingest extra salt with a special, high fat diet as well. They all go through hours of respitory the treatments every day in an attempt to loosen and clear the mucus from their airways. In addition, there are regular 3 month checkups, at times more frequent if they are actively sick. Plus, if a CFer has been consistently sick or under the weather, they are admitted into the hospital for a "tune up", where they undergo 10-14 days of IV antibotics, intense physiotherapy and possibly surgeries for complications. Luna has had four admissions already that have included surgeries. With her now being in school the number of admissions is likely to increase due to the increased exposure to germs and viruses.
There are 30,000 people in the US (70,000 WORLDWIDE) that are living with CF. While there have been huge breakthroughs in medicine dealing with the symptoms of CF, there is currently no cure. Many CFer's don't qualify for the new medicines for multiple reasons, including specific genetic mutations that the medicines don't work on. Luna is one of the many that cannot receive these life prolonging medicines. The CF community and families strive to raise awareness for those effected by this insidious disease and to raise funds in an effort to find a cure. This is where you come in, dear reader. We ask that you join Team Moon Flower or make a donation on Luna's behalf, to continue the Cystic Fibrosis Foundation's mission to find a cure, so that no one else's child or loved one has to endure the hardship and struggle that these CF warriors currently face.
Please, be apart of our CF Community and Team Moon Flower! You can join or donate by going to our web address or call me (Brandy Banner) at 541-992-3494.
I will update this page soon. Thank you for your years of continued support and prayers.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.