I hope everyone is doing well!! We are so EXCITED to be returning after an AMAZING year last year!! We will be walking on May 4th in the Lehigh Valley Great Strides Walk, which is held at Cedar Crest Community College. We will also be ordering shirts for our team like we have done in the past. They are $20 (half of the proceeds with go to the foundation as a donation and the other half will go towards the purchase of the shirt). If you would like one please let me know as I must order them by April 1st.
For those of you that are new to us this year, CF is a big part of our lives. We have 3 beautiful and amazing children, two of which were born with CF. Unfortunately, this disease has affected our family too many times. We lost Johnny's sister, Suley, eleven years ago at only 22 years of age, due to complications pertaining to CF.
Cystic Fibrosis is a life-threatening, genetic disease that causes persistent lung infections and progressively limits the abilitly to breathe. In people with CF, a defective gene causes a thick, buildup of mucus in the lungs, pancreas and other organs. In the lungs, the mucus clogs the airways and traps bacteria which leads to infections, extensive lung damage and eventually respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that are needed in the body to break down food and absorb vital nutrients. As of today, the life expectancy of someone who has CF is 37 years old, and there is NO CURE!! .
Here is a little background and update on my CF Troopers!!
Our beautiful babygirl ~ Ashley Paige was diagnosed at 6 weeks old. She is now a AMAZING, VIBRANT, LOVING 12 year old in the 6th grade ~ yes thats right she is a Middle Schooler :( !! So far she has had a GREAT year ~ no admittance to the hospital ~ and they are happy with her progress. She LOVES to sing and is currently taking voice lessons!!!
Our little monster ~ Jacob Chase was diagnosed at 3 weeks old. This little trooper, who was born 6 1/2 weeks early, has definitely had some battles in his path, but he always seems to overcome any obstacle. He is now 5 years old and just started Kindergarten!! This has been a good year for him also. We are still having a little trouble with his weight gain but we will get there!
So I am reaching out to you for your HELP to reach my goal off $20,000. Nearly$.90 of every dollar goes straight to vital CF programs that support research, care and education for Cystic Fibrosis. With your help a cure is in our REACH!!
We hope to see EACH & EVERYONE of you on May 4th!! If you would like to join us ~ Please click the "Join Our Team" below and register! If you are unable to make it but still would like to donate ~ Please click the "Donate Now".
Every little bit helps make Ashley, Jacob and all those fighting CF live healthier and longer lives!!!
As always our family can't THANK YOU enough for all the continued LOVE & SUPPORT!! We are so truly BLESSED with the AMAZING family and friends we have!!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.