Bennett was diagnosed with Cystic Fibrosis at 8 days old. As parents it is so difficult to hear that our child's life expectancy may be shorter than our own. This drives us to support the Cystic Fibrosis Foundation and all of the amazing research they fund that has improved both quality and quantity of life for those with CF. We remain hopeful that Bennett will live a fulfilled and long life in keeping up with his daily preventative treatments. It is our hope to participate in the Great Strides walk every year with our family and friends to celebrate any triumphs, small or large, that Bennett has had in fighting CF.
Why name our team "Sweet & Salty"?
CF is a salt wasting disease so they can not reabsorb salt lost through normal perspiration. This means when we kiss his sweet forehead we can taste the salt on our lips. We even added salt to his milk as an infant. To combat CF Bennett follows a daily regimen of breathing treatments, chest percussions, and taking digestive enzymes every single time he eats. We are thankful for his fantastic medical team and the care they provide for our sweet boy.
We hope that you can walk with us on May 4 in Allentown!
If you are not able to join us at the walk then we hope you might consider donating money to the CFF through our team to help fund research that may be life changing for Bennett!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. Will you join us? All we need you to do to become a member of our team is click on the "Join our Team" button. From there you can make a donation and start your fundraising.
By becoming a member of our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.