When Rebecca was one week old, her newborn screening test revealed that she might have cystic fibrosis. After months of tests and waiting, we learned that this nightmare had become our reality After we got over the initial shock of it all, we began our mission of living and providing Becca with a normal life, as best as we could. She began nebulizer treatments and chest physical therapy right away and we learned to settle into a new routine. As much as we maintain a positive attitude and outlook, the reality is that it isn't normal for a three year old to have to complete three different nebulizers, PEP therapy, and chest physical therapy when she wakes up and before she goes to sleep each and every day. When she becomes sick, these treatments increase to 2+ hours per day. When she was 10 months old, she began using a vest connected to a compressor to shake her little lungs. She has now clocked 902 hours (and counting!) connected to this machine. While we are incredibly grateful that she has access to this treatment, we hope that someday she doesn't needit anymore. Not too long ago, she asked me when she wouldn't have her CF anymore. My response was "I don't know but people are working very hard to help it go away". I hope that someday I will have a much better answer for her. We hope and pray that she will live a long, healthy, happy life.
30,000 people in this country are living with CF. The CF Foundation is supporting groundbreaking research towards finding effective treatments to help slow the progression of lung damage and ultimately, finding a cure. Your support will help to advance life-saving research and medical progress and is 100-percent tax deductible.
We would love to have you with us this year as we walk in search for a cure! Thank you for your support!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.