Year number SEVEN! For those of you who are veterans of Great Strides - welcome back! For those of you who are new...
Drea was diagnosed at just a week old with Cystic Fibrosis, a genetic condition that causes the mucus in her lungs and pancreas to become thick and sticky, leading to lung infections, problems digesting food, and a host of other problems throughout the body. When Drea was just hours old, she had her first surgery to remove part of her small intestine that had become blocked. At 11 months old, she had her second surgery to remove the upper right lobe of her lung that had become infected beyond treatment. Since that time, we've been thrilled with her health and been able to follow through on our goal of no more body parts removed!
Drea is kept healthy through about 75 minutes of breathing treatments every day. She takes over 30 pills daily and has done several clinical trials to help develop new and better medications for herself and others who have CF. She is supported by an amazing team of professionals - pulmonologists, nurses, respiratory therapists, physical therapists, social worker, nutritionist, and more. She is also supported by a loving team of friends and family who care for her, challenger her, and love her.
These treatments and people are so successful that you would never know that she was sick by looking at her, talking to her, or even spending quite a bit of time with her. But let's be clear: her condition is serious and requires continued advances in medical care for her to live a full life.
In year seven, we have more hope than ever that a cure will be found soon. Just this year an incredible drug was approved for people with CF ages 12 and up and we can't wait for Drea to start it when it is approved for younger kids. It isn't a cure. But it will buy us valuable time until we get one. The motto for the CF Foundation is, "Until it's Done." Will you help us get there sooner and donate today?
By becoming a member of our team and making a donation, you are making the choice to continue on beside us. Your support- both financially for the CFF and as friends and family - give us hope.
Please support Drea!
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. Help us reach our fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.