Join our team and help us get one step closer to a cure for cystic fibrosis!
Andrew was born November 2013 with an intestinal blockage that required surgery immediately after delivery. As he recovered, we learned that Andrew has two copies of the df508 mutation and has cystic fibrosis. After 12 weeks in the NICU and two intestinal surgeries, Andrew is growing and thriving. He loves cars (and trains, playing outside, and playing with superheroes and Legos. Most days you would never know that he is sick, but he works hard doing his breathing treatments and taking his medicines every day to stay as healthy as possible!
Cecilia, Our newest CF Fighter had a much easier start to her life with CF. We work hard to keep her as healthy as possible!! She gives great snuggles and loves to laugh and play with her big brother and sister! She loves Me-me (Mickey Mouse) and Go (Frozen).
We are hopeful that through continues funding and research, a cure for CF will be found in their lifetimes!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.