D for DYNAMIC. Declan has dynamic expressions. His frown will break your heart but his smile is sunny and full of life and would melt the iciest heart.
E for EAGER. Declan is eager to explore wide open spaces and have room to run and be free.
C for CUNNING. Declan doesn't always let on, but I've seen the wheels turning and he can be quite the stinker. Just watch him play catch with his mom during lunch.
L for LOVE. Declan is full of love. When he rests his hand on this aunt's arm, this aunt heart can't even handle the sweetness!
A for AUTHENTIC. Declan is himself. May he never grow out of that.
N for NEIGHBORLY. Declan has met some of his neighbors and brightens their day by being their friend.
It's been a big year for Declan and for CF. Trikafta is a drug that has been approved by the FDA within in the last year. While not a cure, it's helped a lot of people and is now accessible for those 12 and up. It's a big deal! Since our last CFF Great Strides Fundraiser walk, Declan has turned 3, had eye surgery, been diagnosed with autism, AND STARTED PRESCHOOL! He does half days and is crushing it.
Our whole family loves watching Declan grow and look forward with anticipation to what he will accomplish next. We are also cautiously optimistic. This year has brought us to the hospital more than once. We hate seeing our little fighter stuggle. That is why we walk. We dream of a day when Declan no longer needs breathing treatments and his food can go down without enzymes or laxatives.
Please support me, my family, and my nephew Declan!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.